Diary of A Sick Kid

I am India. I have suffered from a variety of health problems for most of my life. I made this blog to organize my thoughts and help others.

Apr 24

Life Update:

1. I am so bad at keeping up with this blog. 

2. I have been cleared for MS!

3. They are now looking into Wilson’s disease due to high copper levels.

4. My Headache: It has been getting steadily worse. I don’t like it. I recently had Occipital Nerve Blocks done and they provided me with little relief and horrible neck pain. However, this is not the norm. 

5. If I dont get better by summer/dont learn how to pretend to be healthy, I get to spend my summer in an inpatient hospital looking for a diagnosis. I’m sorry, it may work for some people, but I would probably go nuts. 

6. What I WILL be doing this summer instead of being hospitalized: Getting a damn job. Working and working and working. Attending the National Student Leadership Conference for Medicine. And visiting old friends. 

Plus one dull week in Oregon.

Yay.

How have all my delightful followers been?

I hope your spoons are plentiful!


Apr 23

chronicillnesscat:

Stuff Healthy People Say To Sick People


Guys look what I found.


Mar 19

I’m so sorry I haven’t been posting.

I’ve been having a pretty bad relapse. 

I’m sorry. 


Mar 5
jaeschaos:

Life w/ #fibromyalgia

jaeschaos:

Life w/ #fibromyalgia

(via fibrosupport)


(via fibrosupport)


Feb 21
owakura:

Just a sample of an enormous list.

owakura:

Just a sample of an enormous list.

(via invisiblyill)


Feb 20
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: Top: “Go to several doctors in the span of a couple weeks, they all find nothing” Bottom: “They ran the exact same tests that had nothing to do with what was wrong”]
I get really dizzy when I sit up, stand up, bend over, and other things like that. This can and has made me black out and sometimes even almost faint, and most of the time it makes me fall down unless I hold onto something and wait for a few seconds. I started going to the doctors because of this, and explained that it feels like my heart beats harder when this happens. All of them ran the base blood tests (ex. blood sugar levels) with some thyroid tests because of my family history, and found nothing. It took one realizing that I mentioned my heart beating harder (and he then verified that it was happening) to think that maybe I should see a cardiologist. I haven’t been able to call in the appointment yet though. :/

Hun, get tested for POTS. That is EXACTLY what POTS is like.
But, all a doctor is going to do is run a tilt table and if you test positive, they will recommend you drink TONS of water and start taking salt tablets to increase blood volume. 

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: Top: “Go to several doctors in the span of a couple weeks, they all find nothing” Bottom: “They ran the exact same tests that had nothing to do with what was wrong”]

I get really dizzy when I sit up, stand up, bend over, and other things like that. This can and has made me black out and sometimes even almost faint, and most of the time it makes me fall down unless I hold onto something and wait for a few seconds. I started going to the doctors because of this, and explained that it feels like my heart beats harder when this happens. All of them ran the base blood tests (ex. blood sugar levels) with some thyroid tests because of my family history, and found nothing. It took one realizing that I mentioned my heart beating harder (and he then verified that it was happening) to think that maybe I should see a cardiologist. I haven’t been able to call in the appointment yet though. :/

Hun, get tested for POTS. That is EXACTLY what POTS is like.

But, all a doctor is going to do is run a tilt table and if you test positive, they will recommend you drink TONS of water and start taking salt tablets to increase blood volume. 


Feb 17
alittleanonymity-please:

Yeah, my meme making skills suck, but I feel like this is pretty relevant. 

alittleanonymity-please:

Yeah, my meme making skills suck, but I feel like this is pretty relevant. 

(via bendybutnotbroken)


Feb 7
bendybutnotbroken:

crohnsandarthritis:

diseaseonmysleeve:

chroniccurve:

You know, this is how I feel on a bad day. But most of the time?
I’m grateful. Sound crazy? Here’s why:
Grateful to have doctors that work with me so well to get me as healthy as possible. Some people don’t have the opportunity to even see a physician.
Grateful that pills exist that I can take, no matter the amount, to help combat my disease, even if there is no cure. Some diseases have no treatment at all. Some people don’t have access to treatment.
Am I grateful for the stress, fatigue, suffering or pain?
No, but I am grateful for the lessons I have learned from the cards I have been dealt
I am grateful for the perspective and empowerment I have gained
I am grateful for the opportunities I have created for myself out of this struggle.
And if I didn’t think this way, if I wasn’t grateful, I would be miserable and “tired of” everything constantly. And that is just no way to deal with any challenge in life.
I’m not saying don’t let yourself have a bad day— a pity party is necessary sometimes to let everything out— but the next time you’re having a “I’m tired of everything” moment, take another moment to acknowledge what you’ve also gained through the experience. If you can’t think of anything, perhaps it’s time to consider a change. Chronic illness can be the greatest teacher, but only if you allow it to be so.
Reblog with what chronic illness has made you grateful for. I dare you!,
E.

Chronic illness has made me thankful for the friends in my life who are willing to listen to and support me through my story - the easy days and the painful days.

“No, but I am grateful for the lessons I have learned from the cards I have been dealt.”
Still, I get tired of it all.
Thank goodness I’m getting closer to remission!

Im grateful for my family and friends that have stuck around

bendybutnotbroken:

crohnsandarthritis:

diseaseonmysleeve:

chroniccurve:

You know, this is how I feel on a bad day. But most of the time?

I’m grateful. Sound crazy? Here’s why:

  • Grateful to have doctors that work with me so well to get me as healthy as possible. Some people don’t have the opportunity to even see a physician.
  • Grateful that pills exist that I can take, no matter the amount, to help combat my disease, even if there is no cure. Some diseases have no treatment at all. Some people don’t have access to treatment.

Am I grateful for the stress, fatigue, suffering or pain?

  • No, but I am grateful for the lessons I have learned from the cards I have been dealt
  • I am grateful for the perspective and empowerment I have gained
  • I am grateful for the opportunities I have created for myself out of this struggle.

And if I didn’t think this way, if I wasn’t grateful, I would be miserable and “tired of” everything constantly. And that is just no way to deal with any challenge in life.

I’m not saying don’t let yourself have a bad day— a pity party is necessary sometimes to let everything out— but the next time you’re having a “I’m tired of everything” moment, take another moment to acknowledge what you’ve also gained through the experience. If you can’t think of anything, perhaps it’s time to consider a change. Chronic illness can be the greatest teacher, but only if you allow it to be so.

Reblog with what chronic illness has made you grateful for. I dare you!,

E.

Chronic illness has made me thankful for the friends in my life who are willing to listen to and support me through my story - the easy days and the painful days.

“No, but I am grateful for the lessons I have learned from the cards I have been dealt.”

Still, I get tired of it all.

Thank goodness I’m getting closer to remission!

Im grateful for my family and friends that have stuck around


Feb 3

Sjogrens

illsharemyspoonswithyou:

When I saw this image I almost cried. Not out of sadness, but because I finally have answers. Do you see the line pointing to the stomach? It says gastroparesis. Finally, I have a reason! I have understanding!! And every other symptom on there… just confirmation my fight is real and I’m not simply “stressed”. 

Keep fighting spoonies. We’re true warriors! 


crumbsinthesand:

My sick little life.

crumbsinthesand:

My sick little life.


Semester Lesson: Self-Care and Following Your Dreams

omnomnomdiagnosis:

I think the hardest things I’m going to need to learn this semester are not giving up on my dreams and learning how and when to take a time out and fix myself.

Self-care can be difficult in college, especially with professors that might not understand quite what chronic illness entails.  However, this semester I’m learning to take more time away from class if I’m really not feeling up to it.  Being there is all well and good, but if I have to take Vicodin and hydroxyzine to get through it, it might not be worth it if I’m barely going to be awake and paying attention.

As for my dreams… well, I’ve finally picked up that biology major with a biochemistry minor that I’ve been wanting to do for a long time.  Yeah, I’ll be in school longer, but at least I’ll be doing what I want to do.


Jan 28

Personal:

So I did something to my back. Dunno what. 

But now it hurts so much I am just crying in my underwear because I tried to put on pants and started screaming.

YAYYYY

Hospital Time. 


Jan 24

(via egbertz)


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